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Confessions of a Rare Disease Mama

Confessions of a Rare Disease Mama

Jillian Arnold
Released: 2025-01-17
© 2025 Confessions of a Rare Disease Mama
Confessions of a Rare Disease Mama - QR Code
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59 Episodes
Audio
Listen on Apple Podcasts
Free0%
59 Episodes
Audio
Listen on Apple Podcasts
Released: 2025-01-17
© 2025 Confessions of a Rare Disease Mama
Most Recent Episode
A Mother’s Legacy: Lauren Williams’ Commitment to GRIN1 Families in Honor of Her Son

A Mother’s Legacy: Lauren Williams’ Commitment to GRIN1 Families in Honor of Her Son

Time: 53:12
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Send us a textIn this moving episode of Confessions of a Rare Disease Mama, I sit down with Lauren Williams, a rare disease advocate and one of the driving forces behind the CureGRIN Foundation. Lauren shares her journey as a mother to a son who bravely fought against GRIN1, a rare genetic condition, and the heartbreak she has and continues to endure from his passing just over a year ago.Lauren opens up about how she made the decision to continue to advocate after her son's passing, dedicatin...
Episode ID: 1000684341318
GUID: Buzzsprout-16229121
Release Date: 17/01/2025, 10:30:00

Description

Join me every week as I navigate the ups and downs, and everything in between of the crazy stressful, but always beautiful life of being a rare disease parent.

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https://feeds.buzzsprout.com/1929555.rss

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